Event

HENI Equilogue: How can communities drive change?: Evidence, advocacy and on-the ground-experiences of Community Action for Health to achieve health reform for all

HENI 24 Equilogue

Social Participation for Health (SPH), also known as Community Action for Health (CAH) or Community Participation in Health, is a critical strategy for engaging communities and fostering citizen involvement in health issues. Recognised as a cornerstone for achieving Primary Health Care (PHC) and Universal Health Coverage (UHC), SPH has its roots in the Alma-Ata Declaration of 1978 and subsequent global health initiatives. It aims to empower communities, especially marginalized populations, to articulate their health needs and advocate for their rights. These efforts have emphasized the importance of decentralisation and active citizen engagement, striving to improve government responsiveness, cost-effectiveness, and accountability.  This approach places communities and civil society organizations at the center of health policy and service design, ensuring these are aligned with the needs of the people and advancing the Leave No One Behind (LNOB) agenda.

In May 2024, global leaders will convene in Geneva at the World Health Assembly (WHA) to discuss the World Health Organization's (WHO) financial, programmatic, and strategic future. This assembly will include updates on existing health policy frameworks and the consideration of new ones. Notably, a resolution co-proposed by Slovenia and Thailand advocating for social participation in achieving UHC, health, and well-being is slated for discussion and potential adoption.

Building on the upcoming 77th World Health Assembly discussions, HENI’s 24th equilogue will explore the critical role of Community Action for Health (CAH) and Community-Based Organisations (CBOs) in driving Universal Health Coverage (UHC). Drawing on findings from an ongoing realist review by the SPHERE (Social Participation for Health: Engagement, Research, and Empowerment) consortium, this equilogue will serve as a platform for sharing emerging evidence on mechanisms that have emerged for enhancing inclusivity in health reforms across diverse global settings. This evidence will be further informed by insights from the forthcoming WHA assembly on resolution on social participation for health, especially its emphasis on the pivotal role of CBOs and ongoing deliberations about their contributions. Finally, to contextualise findings from the realist review and the resolution on social participation for health, the equilogue will highlight exemplary CAH models, initiatives, and the challenges encountered by CBOs in various Indian contexts, informed by the experiences of CBOs collaborating in The George Institute for Global Health's ongoing project, PATANG: Promoting Community Action for Health - A Co-Produced, Technology-Enabled Platform to Achieve National Goals.

Mark your calendars for 21st June 2024 | Friday | 1600-1730 IST

Speakers

Renu Khanna: SAHAJ, Gujarat; Distinguished Fellow, The George Institute for Global Health

Prabodh Nanda: Senior Programme Coordinator, State Health Resource Centre, Chhattisgarh

Raj Kumar Gope: Team Lead, Ekjut, Jharkhand

Shibanand Rath: Evaluation Manager, Ekjut, Jharkhand

Shraddha Mishra: Research Assistant, The George Institute for Global Health

Neymat Chadha: Research Fellow, The George Institute for Global Health

Devaki Nambiar: Program Director, The George Institute for Global Health

Format of the session: The webinar will start with a fireside chat hosted by Ms. Renu Khanna, co-founder and trustee of SAHAJ, featuring representatives from CBOs deeply involved with work encompassing varied CAH models in diverse Indian contexts.

Following this, a team from The George Institute for Global Health India sharing emerging findings from their realist review on SPH in global contexts, and a debrief on the deliberations surrounding the SPH agenda at the 77th WHA, with a particular focus on CBOs.

Agenda

TimeItem
15:45-16:00 ISTAll panelists join on Zoom link
16:00-16:05 ISTWelcome and Introduction by Devaki Nambiar* (HENI, The George Institute for Global Health, SPHERE)
16:05-16:50 IST

Fireside chat on CAH models hosted by Ms Renu Khanna, SAHAJ, Gujarat, Distinguished Fellow, The George Institute for Global Health

Participants:

Prabodh Nanda, State Health Systems Resource Centre(SHRC), Chhattisgarh

Rajkumar Gope, Ekjut, Jharkhand

Shibanand Rath, Ekjut, Jharkhand

16:50-17:00 ISTPresentation on realist review evidence on social participation and the role of CBOs in enhancing inclusivity for health reforms (Shraddha Mishra, The George Institute for Global Health)
17:00 IST-17:10 ISTDebrief and key insights on SPH agenda, deliberations and contestations with a   focus on CAH and CBOs (Neymat Chadha, The George Institute for Global Health)
17:10-17:15 ISTClosing remarks

Speakers

  • Renu Khanna (SAHAJ, Gujarat; Distinguished Fellow, The George Institute of Global Health)

    Renu Khanna brings over four decades of experience in gender equality and human rights related to health. Her multifaceted journey includes roles as a practitioner, researcher, and mentor, engaging with marginalized communities at the grassroots level, civil society organizations, and national policymakers. In 1984, she co-founded SAHAJ (Society for Health Alternatives), which initially worked with urban poor waste-picking women. Over time, SAHAJ expanded its focus to address civil and political rights issues of the urban poor, including sexual and reproductive health and rights (SRHR). Currently, SAHAJ collaborates on an intersectional SRHR program involving marginalized communities such as Dalit, Adivasi, trans women, and girls with disabilities.

    Renu worked for over 18 years in a tribal district with poor development indicators. During this time, she collaborated with the Public Health Department of the Bombay Municipal Corporation. As a Co-Principal Investigator, she contributed to collaborative projects with the Liverpool School of Tropical Medicine (LSTM) and the Royal Tropical Institute (KIT) Amsterdam. Currently, she serves as the Vice Chair of the Advisory Group of the ARISE Consortium led by LSTM.

    Additionally, Renu taught a course on Gender, Health, and Rights at Azim Premji University (for MA Development Studies students in 2021 and 2022) and guides research for students and community-based organizations. Her active involvement in feminist and SRHR movements and coalitions within India, regionally, and globally allows her to translate grassroots lessons into potential policy measures. Over the years, she has made significant contributions to several UN organizations. Currently, she serves as a Lancet Commissioner for Gender and Global Health, a member of the Gender Advisory Panel of WHO, and a Distinguished Fellow at the George Institute, Australia.

    Renu Khanna
  • Prabodh Nanda (Senior Programme Coordinator, State Health Resource Centre,Chhattisgarh)

    Prabodh Nanda pursued his Master’s in Social Work (MSW) from Utkal University, Bhubaneswar, Odisha. He has 20 years of experience in the field of academia and community development. For the last 13 years, he has been involved in public health, particularly in Community Processes activities. He is a certified National Trainer under the National Health Mission for Community Processes activities. He has several research publications on the work of Mitanin-Community Health Workers to his credit. He is a good mentor and an excellent team leader.

    Prabodh Nanda
  • Raj Kumar Gope (Team Lead, Ekjut, Jharkhand)

    Raj Kumar is a postgraduate in Rural Management with over two decades of experience working on health and nutrition issues through community empowerment. Currently, he serves as the Team Lead at Ekjut, a DASRA-Harvard Social Impact Leadership Fellow, and a member of the State Resource Group in Jharkhand under the National Health Mission. Additionally, he is a Leadership for Environment and Development (LEAD) Fellow. Raj Kumar has been actively involved in designing and implementing community-based and community-led programs centered around women’s groups to address health and nutritional issues. He has also co-authored several papers on the Participatory Learning and Action approach in health and nutrition. Furthermore, he contributes to capacity building for Officer Trainees at Lal Bahadur Shastri National Academy of Administration, using various participatory tools.

    Raj Kumar Gope
  • Shibanand Rath (Evaluation Manager, Ekjut, Jharkhand)

    Shibanand Rath has been working in the social development sector for the last 24 years, with 19 of those years spent at Ekjut. His work involves designing manuals, providing training, implementing and evaluating community mobilization initiatives through women’s groups. These initiatives, known as Participatory Learning and Action (PLA), have been pioneered by Ekjut. Their goal is to improve maternal and child health and nutrition, address gender-based violence, and enhance the overall health, nutrition, and well-being of adolescents.

    Shibanand is also involved in managing creches, focusing on nutrition and early childhood stimulation. He works on scaling up creche programs through the government system in various districts in Odisha, as well as through philanthropic efforts.In addition, Shibanand has led several evaluation studies in Odisha and Jharkhand to assess the impact of Participatory Learning and Action across various themes related to maternal and child health and nutrition. His research findings have been published in high-impact, peer-reviewed journals such as The Lancet, Lancet Global Health, and BMC Public Health. Furthermore, he contributes to capacity building for Officer Trainees (IAS, IPS, IRS) at Lal Bahadur Shastri National Academy of Administration, using various participatory tools. Shibanand holds a Master’s degree in Sociology from Central University, Hyderabad, and has a degree in International Health and Policy Evaluation from Erasmus University, The Netherlands

    Shibanand Rath
  • Shraddha Mishra (Research Assistant, The George Institute of Global Health)

    Shraddha Mishra (MPH, BHSc) is a researcher at the George Institute for Global Health with seven years of experience in health advocacy. She uses an intersectional lens to collaborate at the interface of health promotion, scholarship, and community action for health and social justice. Within SPHERE’s secretariat, Shraddha plays a leading role in research-advocacy activities distilling lessons from participatory efforts, and provides technical support to collaborators in Argentina, Kenya, Tunisia and Vietnam. Among Shraddha’s favourite activities are (un)learning and imagining liberated futures for all, both of which will continue to guide her praxis as an incoming MD/PhD student and future physician-scientist.

    Shraddha Mishra
  • Neymat Chadha (Research Fellow, The George Institute of Global Health)

    Neymat is a Research Fellow at the George Institute of Global Health, focusing on community action for health and social participation, health equity, primary health care, and women’s health. She also supports the Secretariat of Social Participation for Health, Engagement, Research and Empowerment (SPHERE), with a particular focus on projects in Kenya, Vietnam, Argentina, and Tunisia. Trained as a sociologist with a specialization in medical sociology, Neymat is currently pursuing her PhD in social anthropology at the Indian Institute of Technology (IIT) in New Delhi. Her research involves an ethnographic study of early-age hysterectomies in India. Prior to joining GIGH, Neymat has worked as an independent consultant for several organizations, including Evidence Action and SPRF India. She has also served as a teaching assistant at IIT, Delhi.

    Neymat Chadha
  • Devaki Nambiar (Program Director, The George Institute of Global Health, India)

    Devaki Nambiar is Program Director at the George Institute for Global Health India with appointments at the Manipal Academy of Higher Education, India, the University of New South Wales, Australia and the Harvard TH Chan School of Public Health, USA.  For two decades, she has led mixed methods research, technical assistance, training and capacity-strengthening related to health policy and systems, with an emphasis on health equity and the social determinants of health.  She has a passion for and commitment to social participation for health and is part of the Secretariat of the Social Participation for Health: Engagement Research and Empowerment (SPHERE) Consortium (www.spheretogether.org). She completed her doctorate from the Johns Hopkins Bloomberg School of Public Health in 2009

    Devaki Nambiar

New study reveals alarming economic burden of Tuberculosis treatment in India

Media release

Researchers from The George Institute for Global Health India in collaboration with researchers from Indira Gandhi Government Medical College (Nagpur) and the London School of Hygiene and Tropical Medicine (UK) have conducted a survey shedding light on the staggering financial burden faced by Tuberculosis (TB) patients in India.

Event

Ubuntu-Inspired Reflective Series: Overloaded Sex, Gender and Health Equity Conversations: What is working? What is worth considering?

Ubuntu-Inspired Reflective Series

Inspired by the African Philosophy of Ubuntu, the 'Tea with Africa' Series, our regular forum for interacting with African scholars, has been renamed the Ubuntu-Inspired Reflective Series. This new name emphasises the importance of embracing relationality and accountability in the way we engage African scholars and their communities.  

The George Institute for Global Health invites you to its next webinar in the 'Ubuntu-Inspired Reflective Series' (formerly known as 'Tea with Africa') on 'Overloaded Sex, Gender and Health Equity Conversations: What is working? What is worth considering?'  

Tuesday 18th June at 8am GMT |  9am BST |  10am CAT |  11am EAT |  1.30pm IST |  6pm AEST. 

In this panel discussion, there will be a knowledge exchange between African experts and their counterparts from The George Institute. During this session, the speakers will explore cross-learning and collaborative opportunities on promoting sex and gender equity in a people-centred and culturally sensitive manner.  

The session also intends to share success stories, explore cultural contexts and local priorities related to research on sex, gender, and health equity in African countries and beyond. 

About the Ubuntu-Inspired Reflective Series

The 'Ubuntu-Inspired Reflective Series' is part of The George Institute's efforts to promote global health collaboration with African researchers, institutions, and communities. Each event allows for the exchange of knowledge between African and non-African researchers. Participants are encouraged to share their unique challenges and solutions, as well as discuss the implications for different regions. Those who wish to contribute more or connect with others are encouraged to share contact information and/or send event reflections for possible inclusion in the event wrap-up blog.

Please note that there will be French interpreter available on this call for those who require translation. 

Speakers

  • Alice Witt

    Alice Witt is a Research & Policy Fellow at The George Institute for Global Health, based in the UK office. Alice joined in early 2023 to work on the MESSAGE (Medical Science Sex and Gender Equity) project, an initiative to develop a UK-based policy for integrating sex and gender considerations into biomedical research.

    A social scientist by background, Alice’s research interests sit at the intersection between gender and health. Prior to joining The George Institute, she worked at the London School of Hygiene and Tropical Medicine, where her research focused on the influence of social norms on family planning programmes and prevention of gender-based violence. She is particularly interested in how institutional norms and policies can shape women’s health and healthcare, and is passionate about translating research in this area into real-world impact.
     

  • Mushimiyimana Gaudence

    Mushimiyimana Gaudence is Co-Founder Executive Director of Rwandan Organization of Women with Disabilities. She is also the Founding Managing Director of DisAlink Social Entreprise & was awarded woman of Courage/US Ambassador to Rwanda for promoting Inclusion of PWDs.

  • Dr Nathalie Sawadogo

    Dr Nathalie Sawadogo is a teacher-researcher and assistant professor of demography at the Institut Supérieur des Sciences de la Population (ISSP) at the Joseph Ki-Zerbo University (Burkina Faso). She is a member of the Laboratoire de Recherche Interdisciplinaire en Sciences Sociales et Santé (LARISS) at Joseph Ki-Zerbo University.

    Her research interests include social inequalities in health and education, gender norms and relations. In terms of methodology, she uses both quantitative and qualitative approaches in her research, both in basic research and in the evaluation of projects and programs.

    She is involved in designing and carrying out many studies on education and reproductive health in sub-Saharan Africa, and in Burkina Faso in particular. She is a member of various national and international scientific networks, including the International Union for the Scientific Study of Population and the Union on African Population Studies.

    She is currently leading a mixed operational research on empowerment strategies for adolescent mothers in Burkina Faso in coordination with APHRC and the University of Malawi, as well as a qualitative research on the role of Misoprostol in improving maternal health in Burkina Faso in collaboration with Brandeis University and Cheick Anta Diop University. She is the coordinator, author, and co-author of various scientific publications on social inequalities in health and education.

  • Tinah P'Ochan

    Tinah P'Ochan has worked in the Sexual and Reproductive Health and Rights sector and mental health for over 15 years. A social worker by profession, Her strengths include advocacy, organization development and leading learning processes. A poet and ardent African feminist, Tinah believes in no9n discrimination and induction of all in social and health services to end othering. 

    She lives in rural Gulu with her partner and plants. 

  • Host: Dr Deepika Saluja

    Dr Deepika Saluja is the Program Manager for the Ubuntu Initiative at The George Institute for Global Health.

    Deepika holds a PhD in Public Health Policy from the IIM Ahmedabad, India. With an interdisciplinary background in science, management, and policy degrees, her interests span across different areas of public health including healthcare for the frontline workforce, SRH, mental health, and legislations for strengthening accountability. Deepika holds widespread experience in consulting with various national and international development sector organisations and writes extensively on her experiences. Dr Saluja is an Emerging Voice for Global Health (EV4GH 2016), co-founder and current chair of the Women in Global Health India Chapter, and a strong advocate of bringing diversity, equity and inclusion in all spaces.

  • Host: Kenneth Yakubu

    Kenneth Yakubu is a Research Fellow with the Guunu-maana (Heal) Aboriginal & Torres Strait Research Program and co-Lead of The George Institute's Ubuntu Initiative (previously known as 'Initiative for Partnerships in Africa'). Through the Ubuntu Initiative, The George Institute seeks to expand the scope of its research engagement with researchers and institutions in Africa in a sustainable and people-centred way. Yakubu is passionate about research partnerships that are authentic and equity-focused. He trained as a family physician in Nigeria and practiced for four years before migrating to Australia in 2019.

Study unhealthy food marketing to children

Feasibility study on options to limit unhealthy food marketing to children

The George Institute for Global Health welcomes the Australian Government conducting a feasibility study on options to restrict unhealthy food marketing to children. The consultation paper, prepared by the University of Wollongong and Deakin University, presents a compelling statement of the problem of unhealthy food marketing in Australia, and the need for Government regulation to curb its impact. 

The impetus for action is clear. To have a significant and long-lasting impact, the policy design must be comprehensive and detailed, and fit within a broader suite of initiatives to strengthen regulation on unhealthy foods in Australia.  

The development of a feasibility study on restricting unhealthy food marketing to children is welcome progress. The George Institute recommends that the Australian Government institute the following when introducing any new policy on regulation of marketing to children.  

Recommendations 

  1. New policy should be mandatory, managed by Government, and protect all children under 18  
  • Industry self-regulation, through voluntary codes of practice, has not reduced marketing of unhealthy foods, or reduce children’s exposure to them. Countries that have implemented mandatory government regulation have seen a decrease in sales of unhealthy foods, while countries that have relied on industry self-regulation have seen an increase. 
  • Other voluntary targets developed by the food industry have been ineffective in changing the healthiness of packaged foods, further demonstrating the need for government regulation in the food market.
  1. Unhealthy brands, not just products, should face marketing restrictions 
  • The practice of brand marketing is pervasive, and common in settings such as sports sponsorships.  
  • Brand marketing has been shown to increase children’s preference for unhealthy foods, even when the advertisement is for healthy food items. Not including brands in the scope of the policy risks an increase in this type of brand marketing.
  1. The policy should include all foods defined as unhealthy 
  • The George Institute suggests that further analysis is done that identifies the implications of each of the classification systems on the marketing of unhealthy foods. This could be done using the FoodSwitch database to compare the different classification systems. 
  • Analysis by The George Institute shows that each of the classification systems included in the feasibility study would continue to allow for the marketing of products to children that are defined as “unhealthy” in the discussion paper: foods high in fats, sodium, and sugars. Our preferred food classification system is the World Health Organization (WHO) Regional Office for the Western Pacific (WPRO) Nutrient Profiling Model. However, we suggest the COAG Interim Guide could be investigated as the foundation, with modifications to strengthen its comprehensiveness, clarity, and effectiveness.

 

Mens Health Week 2020

Celebrating Men's Health Week

This week is International Men's Health Week. Men are less inclined than women to actively maintain their health and receive far less information than women do about the importance of their  health and wellbeing. They are also less likely to seek professional help for problems, particularly those of an emotional nature.

To celebrate and raise awareness of men’s health and mental wellness, some of The George Institute’s men share what wellness means to them:

What does “men’s health” and “mental-health wellness” mean to you?

Gian Luca

Mental health wellness is a vital part of the individual’s overall health but is often overlooked by men who sometimes prefer to suffer in silence because they find it difficult to seek support. Making the decision to talk about it takes courage as men are often raised in a way that encourages them to hide weaknesses. Unfortunately, young boys too often still hear phrases like ‘boys don’t cry’. This can often lead boys and men to be ashamed of their anxiety, depression or stress and they might fear to show vulnerability.

John

One way to look at these terms is to see them as levers to open the conversation with men who are notoriously reluctant to talk about their own health at any length or in any depth. Using my personal experience as an example, in 1975 when I was 38, I had coronary heart disease with angina, but I told no one about it, not even my wife, and instead made many excuses for not walking up hills, or running more than five or ten yards. I finally told her after four years.

Martyn

Mental health wellness is a state of well-being; being able to cope with the regular stresses that every-day life throws at you; and something that you really need to become more conscious and take control of as you grow older. Men’s health is everything else that keeps you going and able to enjoy life.

While conventional wisdom is that men aren’t good at talking about their mental health or showing vulnerability, there is perhaps a good reason for it; the stigma and judgement on men showing too much weakness is quite real.

Tim

I believe that mental health means being comfortable about who you are, where you are in your life, and how you deal with those around you. In life, to find ‘your pattern’ can take men, young and old, just a few years, many years, or a lifetime. I don’t think until you find ‘your pattern’ can you truly accept who you are and be content.

Dulesh

From my perspective men’s mental health means that we have the same human needs, connection, respect, and hope; however, how men present these needs may be different.  

Shane

To me mental health encompasses all aspects of your emotions. Mental health seems to stereotypically have negative connotations, when in fact there are many positive aspects to mental health. Mental health wellbeing is how you balance the aspects of your mental health.

Specifically, in my experience, there seems to be the expectation that men shouldn’t express feelings, display emotions or talk about the way they feel. When in fact it’s a strength for anyone to acknowledge, appreciate and travel the journey that accompanies mental health and understand that in doing do, you lead the way by example, and encourage others to do the same.

Supermarket home brands could be key to lowering salt intakes in Australia

Preparing for the future of the Health Star Rating (HSR) System

The George Institute, supported by a coalition of public health and consumer representatives, has written to Australian and New Zealand Food Ministers to express our support for their steps towards mandating the display of the Health Star Rating (HSR) system. Voluntary uptake has stalled after a decade of implementation, and the HSR system must be mandated and strengthened to retain consumer trust and achieve its public health goals.

Please refer to our full submission on this page. 

The Scan podcast website banner

As the climate changes, how can we protect our food systems and our health?

The climate is changing, and this is affecting our environment, how we live, work, what we eat, and ultimately our health. This is particularly the case for people in vulnerable communities. For World Environment Day, in this episode of The Scan we discuss the environment health nexus with two speakers about their work in India. 

Research Manager Sarah Iqbal speaks with Mr Gangaram Paikra, a local leader, activist and one of the founder members of Chaupal, a community-led initiative focusing on the right to food working with marginalised and poor communities. Sarah also speaks with Dr. Sahiba Kohli, a Research Fellow at NIHR Global Health Research Center for Non-Communicable Diseases and Environmental Change. Read more about the Center here.

Lady smiling and using a laptop

Remote dementia prevention trials become reality with world-first guidelines

People living beyond city-based clinical trial sites will now be able to participate in dementia studies with The George Institute of Global Health’s world first guidelines for remote clinical trials in prevention published today in Alzheimer’s and Dementia.1

Lead researcher, Associate Professor Ruth Peters, Program Lead for Dementia in the Brain Health Program at The George Institute and Conjoint Associate Professor at UNSW Sydney, said approximately seven million Australians, or 28 per cent of the population, live in rural and remote communities. 

“People living outside of cities and big towns often have poorer health outcomes than people living in metropolitan areas. Technology is driving an increased interest in remote clinical trials but until now there has been no specific recommendations on how to deliver this in the dementia field,” said A/Prof Peters.

Dementia experts based in Europe, UK, Africa, North and South America developed 40 recommendations in an accessible and practical guide for researchers running remote medication trials in dementia prevention.

Clinical and safety responsibilities to protect participants are critical alongside regional regulatory requirements. A/Prof Peters emphasises the recommendations are to aid researchers in the design and delivery of remote trials, not to replace or dictate particular requirements for any given trial.

“People who are unable to access traditional clinic sites because of where they live, mobility, cost, time or caring constraints may now have the potential to participate in remote trials,” explained A/Prof Peters.

This is both significant and timely given the increasing prevalence of dementia and a greater focus on prevention, earlier treatment, and repurposing medications for this condition. This has led to an increase in dementia trials, which would previously have excluded millions of people worldwide.

“Ultimately, our remote guidelines support greater inclusion, a major driver for greater health equity and one that always brings greater benefits. Including a wider population in trials generates findings and critical insights that better reflect the experiences and clinically relevant findings of the diverse communities we live in, informing future treatments and further research in specific populations,” she added.

More than 55 million people globally live with some form of dementia, over 60% of whom live in low-and middle-income countries.3 Every year, there are nearly 10 million new cases. Women are disproportionately affected by the condition both directly and indirectly, providing 70 per cent of care hours for people living with dementia.3,4 
 

  1. Howard, L et al. Decentralised clinical trials for medications to reduce the risk of dementia: consensus report and guidance. Alzheimer’s and Dementia, 2 June 2024
  2. Australian Institute of Health and Welfare. Rural and remote health. Accessed June 2024
  3. World Health Organization. Dementia – key facts. Accessed June 2024
  4. Dementia Australia. Dementia facts and figures. Accessed June 2024